NASAL POLYPS, GET OUT OF MY HEAD


MY SINUS STORY

IN THE BEGINNING…

My sinus trouble started way back in my late teens.

I can remember running around for a whole summer, basically sick, blowing massive discharges out of my nose after surfing or whatever. I remember looking down at these massive things and thinking, gosh, something’s not right. Then one day that year I noticed a golf ball had formed in my armpit – yes, a golf ball, at least that’s what it felt like. (I’d later find this was a swollen gland and that it was filled with poison – your glands are there to fight toxins in your body. Swelling can be a sign that your glands are engaged in a little toxin-fighting warfare.)

The doctor told me I’d have to take antibiotics because I had been running around sick for a long time and the lump, well, that was my body trying to fight the infection. Hopefully, antibiotics would fix it they told me. If not, they’d cut the gland out because it could actually cause a really severe infection if it burst. Lovely.

The antibiotics worked. The golf ball disappeared. But I continued to get sick a lot. And like an idiot, in college, I’d often go on being sick – too busy to want to see the doctor – for months. Until, once again, I’d be put on antibiotics to clear it up.

By my late 20s I was noticing that I was congested a lot. At first, stuff like Afrin worked great. Any time I was congested, sniff a little of that stuff and  that would usually take care of it.

Then, one day, that stopped working.  And I discovered something even more strange happening inside my nose. Or should I say, I discovered something living in my nose – a big ole’ nasal polyp.

It was freaky. One morning, I noticed that it felt like my right nostril was swelling. I’d blow my nose but nothing would come out. So looked in the mirror and, lo and behold, this translucent grape-like balloon was hanging down inside my right sinus passage. It wasn’t mucus, it was fleshy, soft and TOTALLY blocking my right sinus. I remember sticking a pin in it (sanitized it first, of course), thinking maybe I could pop it, but all it did was bleed slightly. I thought, uh, better not do that again.

For the next two years I was constantly sick. I’d catch a cold and it would turn into a sinus infection, the polyp would swell, I couldn’t breathe, I’d take antibiotics, it would clear up and then it would start all over again about a month later. It sucked. But at this point, it was somehow still manageable. (And something I’ve learned about the sinus cursed people like me, we sort of just get used to it. I think part of it is that we simply forget what it’s like to have normal sinuses, to be able to breathe, smell etc. You just forget and begin to accept your new reality.)

BLACK MOLD, PLEASURE TO MEET YOU…

Well, one day, I decided to move into a new house down the street. As I was moving a desk, I discovered something alarming on the wall behind it:  black mold growing in the plaster everywhere. I didn’t even really know what black mold was, nor did I think it had anything to do with my sinus trouble that had, as of late, gotten way worse (it was in this house that I discovered the visible polyp in my right sinus).

(Oh, look! Killer mold growing behind my dresser! Awesome!)

I checked more places around the house. It was in my roommate’s closets, behind some of their pieces of furniture where it was more dark and dank. And well, if you could see this much mold visibly, I could only imagine how much mold was lurking in the wall everywhere all over the house. But of all the places, it was by far the worst in my room. It was everywhere. The more I looked, the more I found. The plaster on my wall was actually saturated and moist from it.

(My roomate’s closet had it too, but alas, he was never sick. So go figure. Not everyone is sensitive to mold. One of life’s mysteries, I guess.)

During the time I lived at this house, I saw some ENTs – two different ones. Both said I had chronic sinusitis. Both said I needed surgery. Both said they’d rarely seen sinuses worse than mine. They said basically I had almost zero room to breathe and that I should really have FESS. I decided they were right. I was sick of the misery. Tired of not being able to breathe. So, I picked my surgeon, did the CAT scan for the Image-guided procedure. And then…

…I moved out of that mold-filled house and I instantly got better. (Was it the mold that took my chronic sinus problems to the next level? I think so – for sure. Many ENTs I’ve spoken to think so.  I know one thing, my sinus problems were 3 times worse living in this house. One other factoid: the woman that moved into the house after me was sick for two years. She sued the property management company for not disclosing the fact that there was mold. Get this: they just painted over it and sold the house to her without telling her about it. Insane.)

GOODBYE, MOLD. NOW THAT I’M AWAY FROM YOU, I’M BETTER NOW, RIGHT?

For a number of years after, I was convinced that it was the house. It was the mold. Now that I was away from it, my symptoms were way better. It was over. And I think I was right – for the most part, for a while at least.

And now that I was better, I thought, why have that surgery?  After all, who needs to have a surgeon probing around cutting things near your eyes and brain unless you absolutely have to? Not me. Hellz no.

In my 30s, bouts of chronic sinusitis seemed to flare up occasionally again. Most the time some antibiotics would clear it up. But more and more often, a little cold would turn into a month-long ordeal. I’d get a cold, but then I’d get the swelling in my nose (the polyps were still there after all). And then I’d stay sick for weeks beyond what a normal person would.

As this pattern carried on through my 30s, I tried everything: Claritin, Zyrtec, Claritin-D, Sudafed, Afrin (but the rebound sinus swelling became unbearable), steroid sprays, saline sprays, cayenne pepper spray (Sinus Buster) and, of course, the homeopathic hippie all-time fav: the neti pot.  Of course, most the time when my sinuses were inflamed, the neti pot was total joke since no rinse could even go one centimeter up my sinuses before being greeted by the Hoover damn known as my sinus polyps.

Little did I know at the time, that it wasn’t just the sinus polyp I could see. There were many, many more I wasn’t seeing. And they filled my sinus cavities (you have six sinus cavities in your head, by the way. Yes, I said, six.). I may have gotten away from the mold, but I couldn’t escape the polyps – they were there to stay now.

And hence, I couldn’t escape my chronic sinus infections. The reason is simple: if you have polyps inside your nasal cavities, you simply can’t drain mucus effectively. If you can’t drain mucus effectively, any cold virus or respiratory infection will stay in your sinuses and fester.

When these bacterial infections fester, they cause you to go on being sick long after the cold virus is gone. And this chronic infection causes the inflammation in your sinuses to just get worse. And well, at a certain point it’s all one self-feeding cycle that you can’t break and every medicine in the world can’t do a thing to help you.

IF YOU WANT TO MAKE YOUR SINUS PROBLEMS WORSE, HAVE A BABY.

Then, when I was 37, I had a baby. And that baby – God love her – was a magnet for every virus known to man, as babies always are. In a span of 6 months, I was sick about 6 different times. Each time 10-20 days of total sinus blockage. Zero air moving through my nose. I was on every medicine you can think and I was doubling the doses and nothing worked. I was chronic mouth breather. I sounded like Marvin the Martian when I spoke.

It was time to see an ENT. Again.

This time, I saw three different ENTs, including one that was basically famous and the ENT to the stars (he’s the ENT for the American Idol contestants). He took a cat scan and said he’d rarely seen sinuses that were worse.

All six of my sinuses, that should have been “black” in the cat-scan indicating open space, were filled with gray, opaque stuff. Could be mucus. Could be polyps. But one thing was for sure, something was terribly wrong.

I was then put on a course of antibiotics to see if it could be cleared up. 5 antibiotics and 6 weeks later, the celeb ENT took another Cat-scan and, well, I was essentially the same, if not – can you believe this? – worse.  At the time, I had just caught a terrible cold a few weeks earlier and my sinuses were terribly inflamed.

The polyp in my right nostril was threatening to make an appearance in broad daylight, as it seemed to be heading right out the bottom of the opening of my nostril (this actually happens to people – insane, but true). It was time for surgery. The celeb ENT agreed.

I saw another ENT to confirm the celeb ENT’s diagnosis. Same exact opinion: time for surgery.

And after a decade of misery, I decided, yes, it was time for surgery. Whatever fear, pain or consequence of the surgery, I couldn’t live like this any more. My wife was going to kill me if I complained one more day. I was going to kill me if she didn’t.

Now it was just a matter of who would perform the FESS procedure.


71 Comments so far
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Ah, good to read the trials of a fellow sufferer. I had my polyps removed almost 2 years ago. The consultant put me on nasonex steroid spray to keep them at bay, but it hasn’t worked. I know that they are back on the march. I did come off the nasonex about a month ago (went back on flixonase), I was concerned at the feeling that something (blood vessel) was under pressure and about to explode in my forehead. This led me to look at side effects, which are really worrying. I also blame the steroid sprays for masking my sense of smell, which does return fleetingly if I forget to take the spray. I did find your info on infections useful as since the operation I have had experienced morning gunge at the back of my throat. But what next/ Would love to be able to smell, not doing so is such a handicap. And I’m certainly not going for another op, anaesthetics play havoc with my memory. What I’d really like to do is track down a consultant who is not only a master at his craft but very into indepth research for new treatments.

Comment by Heather

I’m sorry to hear it’s been such a nightmare for you. This sinus stuff is so perplexing and frustrating, isn’t it? And everybody’s situation is different and unique. Have you done an MRI to see if the polyps are indeed back?

I know it’s always a good possibility they’ll return. For me, it’s been all positive and no signs yet of anything new polyp-wise. But they’re not really noticed until they’re back in a BIG way.

Hope you find some answers, my friend.

Brett

Comment by brettcraig

I had nasal polyps for ten years, 17-27. I couldnt even touch alcohol, the polypos almost DID come out of my nose! Then one day someone suggested cutting out wheat, gluten, yeast, and dairy, (sounds impossible and extreme I know!) But after two months, everything had gone. I even have my sense of smell back. I was a miracle for me, and I say this in the hope that u at least try. I wouldnt wish nasal polyps on my worst enemy!!!!!! Its very hard to give up your favourite foods, but i believe its the root cause of the problem. The Dr’s never even suggested it to me, and u have to wonder whether they want to keep ppl paying the billions they do for sprays and other such remidies, that never work with polyps.! Gd luck!

Comment by robbie

Hi Robbie, I too have nasal polyps. I have had two surgeries and now do not have good insurance to get more. I would like to try the diet. Can you give me more details. I heard that maybe sugar can be a cause as well. What about coffee? Any help you can give will be much appreciated!! Nancy

Comment by Nancy Feldman

Just had polyps removed from deep in my sinuses and feel pretty good. The bleeding stopped after 14 hours and now just feel little tired and was told not to blow my nose for several days.., that is the hard part. I think I will be very happy that I had this procedure done.

R

Comment by Rhonda

How you feeling now? Better I hope!!

Comment by brettcraig

great!! Keep us posted on your progress. Good luck!!

Comment by Nancy Feldman

I am a fellow polyp sufferer as well. This blog could have been written by me word for word! I just had a huge polyp removed yesterday as it was just about dangling outside of my right nostril. Easy procedure but once the ENT took it out he could see that I had at least 4-5 others. I did cut out wheat, sugar, dairy etc….definitely did not help me but I have heard it helping others….lucky ducks! I hope this thread continues as this is one depressing condition to have.

Comment by Sarah Jane

Totallllyy related to this!!!! So did u get the surgery??

Comment by Yuki

Yes! The whole story is on the blog!

Comment by brettcraig

I have polyps in both of my nostrils and I am thinking about getting the surgery. I hear it is extremely painful and it takes forever before your normal again. I need to do something because my girlfriend is about ready to kill me from the snoring and loud breathing. Also, I have black mold in my home and I do not know if it is the cause of getting polyps or how I got them but I wish I knew….

Comment by Sam

Its not terrible I dont think. It is a mystery these polyps. Theories but no absolutes on causes.

But i found the surgery to be extremely helpful.

Comment by brettcraig

http://schuessler-cell-salts.com/healing/nasal-polyps.htm been reading about this type of therapy for awhile now. I don’t have polyps but I am trying to help those who do. Cell salts work small quantities under the tongue. its not luck its science

Comment by Steve

Wow that was strange. I just wrote an very long comment but after
I clicked submit my comment didn’t appear. Grrrr… well I’m not writing all
that over again. Regardless, just wanted to say great blog!

Comment by Mathew

Outstanding story there. What happened after?
Good luck!

Comment by ways to get your ex back

Read recovery room. It’s all there!

Comment by brettcraig

Hi Fellow nasal polyps sufferers. I have had them for about 4 years, since turning 40 actually!!). I have had 1 op which worked for about a year and am awaiting another . I hope everyday that the letter letting me know when the op is happening has arrived! I am now seeing a naturopath who has been great letting me know what I am allergic too. Still have them though! Can hardly speak. Resort to prednisolone on really bad days. Nasonex is totally useless for me. Snore, sleep apnoea and generally feeling crap. I constantly sound like I have a clothes peg on my nose. Sit open mouthed ..Can’t smell a thing and consequently no taste either! Hope they just find a way of getting rid of the blighters. Hate them. Feeling miserable :(

Comment by Kels

I have been off of gluent/dairy/sugar etc since 2 February 2013 & have had NO issues with polyps! No sinus infections…nothing! My energy level is up & am able to breathe! I am taking 5 Green Tea capsules a day as well as nettles in capsule form. Between the natural supplements & change in diet my nasal distress has diminished. I should add that I was food allergy tested & tested positive for many foods. My new doctor who is a Naturopath said this was probably only temporary & thought I would be able to go back to some of the foods if not all of them.

Hang in there & be your own advocate! It took me almost 4 years to find a doctor who was willing to think “outside the box”.
:)

Comment by Sarah Jane

Are you off of Coffee too? I keep starting the gluten/dairy/sugar reg but cannot stick to it.

Comment by Nancy Feldman

Hi,

I don’t drink coffee. :)

Try to stick with the elimination of gluten/wheat/dairy/sugar….you can do it & there are plenty of alternatives! :-)

Sarah Jane

Comment by Sarah Jane

I have had my sinus problem for six years now.alot of black mold in a house I moved into,chemicals from work,?? don’t know. doctor told me I had sinus poylps.long story short,i had 4 surgerys by two diff.doctor’s.i moved from east cost to west cost,hopeing the change in weather would help.NOPE.looks like I will need surgery # 5. I wish there was a doctor who could find a way to fix it and forget it.going though life with out any smell or taste just sucks. steroids work,i call them (the magic pill) makes you feel awesome.but they won’t give you more than a weeks worth,because there bad for you. for all of us,hope they will find a cure

Comment by dan

Vitamin C with bioflavinoids has worked wonders for me. I take 3,000-5,000mg every day plus a high quality multi vit. Google Vit C for Nasal Polyps! My year of suffering is now over in a matter of days.

Comment by ryanshan12@yahoo.com

Hello ryan are you still taking the vitamins.and if not how long do you have to take them for?I have bad nasal polyps as well

Comment by eddie

This is my advice for what it is worth Please do not just keep suffering from sinus issues and nasal polyps,

I think sinus issues may be related to cold, dampy black mold houses black mold creates micotoxins this is very very serious illness, Even if you cannot see it in your house it may be hidden leak in the walls check around if you have to tear open the sheet rock close to the pipies or gutter, You can die from black mold so this is very serious , If there is black mold move out ASAP like today!! Once the fungus is in your nose blood it is stop all foods that create candida/fungus stop all sugar / dairy /wheat. You must go to a really good ENT doctor that really really cares about you . They first give you antibiotics , the neti pot and if it does not work then you must go back that way the doctor can get serious ….This is your health, if the doctor can’t help you find someone that will. Please do not just keep waiting and waiting . You have one life and you deserved to be healthy and happy plus the nose is too close to the brain and you do not want any complication take action now please do not wait!!!

Comment by GRACE

Had the surgery fifteen years ago and within 4 years they were back. Other than (10 day dosages of )prednisone which only clears it up temporarily, one other thing opens up my nasal passage ways. Exercise or an extremely elevated heart rate. Now I have been trying to explore foods that may help open up blood vessels especially in the nasal area.

Comment by Terry

Hey! I’m seeing a 2nd ENT on the 6th. I visited with one & I went to the car & cried :( my throat is always a bright red with tonsils stones. The very back wall of my throat. Looks like its filled with pus pockets. I cant ever breathe out of my nose. Sometimes I can breathe out of one side. It will change from right to left side. The first ent said it was meds that i was on. But told him it was like this b4 and has been for several years. His assistant ran a camera down my nose & throat to look.around. he said I had a polyp. The Dr came in & said there wasnt anything to b done I had dry mouth & to get off my meds. He was a real jerk! So, going to see a different Dr & just say that I dont have a primary care dr. He instantly started treating me bad as soon as he read on my chart who my primary care Dr was. Was very strange!!

Comment by amber

Hi guys, arrrg so sorry to hear of all this nasal misery, i thought i was the only one, ive had a nightmare year with polyps, co-insides with just moving into the property as well.
I,m a chef without taste or smell, great eh and i have polyps in both nostrils, the one in my right tends to try to escape and is often quite visible, swollen and to be honest now the panic attacks are gone they just seriously gross me out and i.m totally sick of felling like a small child with a ever flowing nose grrrr, rant over.
Hey i got a trick to make them reduce and vanish overnight when flared up, going to speak with my gp to see if i may have unwittingly come across some relief, seriously its happened last three time, if its safe il let you guys in on it, yesterday no air and an alien in my nose, today, a lot better, not gone though.
best wishes to you all

Nige.

Comment by nigel moss.

Hey Nige, So what is the miracle cure? Am waiting with bated breath ( and clogged nose). Nancy

Comment by Nancy Feldman

I think I found the cure and answer as to why we get nose polyps :). Here is everything I learned. first things first, if you have nose polyps you should look into getting tested for a “YEAST INFECTION”. apparently that’s what’s causing the polyps. that’s why they say to stay away from wheat, dairy, and mainly sugar, because your apparently fighting the yeast infection. there is an over the counter medication that is supposedly very good for killing yeast infection and its called “FLUCONAZOLE”. I haven’t tried it yet since my doctor already prescribed me with other medicine for my polyps called “AMOXICILLIN”.
this is my first week in this battle so I can’t give you guys any results yet, but i will keep posting after a week. sorry about that, I just felt you guys would appreciate some immediate answer from someone who’s made a break through in this problem. anyways I’ll keep you guys posted, and maybe you guys can confirm if this has worked for you guys as well.

Comment by Michael

YOU ARE DEFICIENT IN VITAMIN C. I suffered for a year with these awful things. Literally thought I was going to die. After finding a post from someone sayin take 5000mg vit C an bioflavonoids every day I was cured in less than 2 weeks. I was so thankful but mad because my ENT could not tell me this. I started with 3000mg of vit c and that did the trick for me. I can smell again, drink alcohol, eat salt, and breath through both nostrils. I have never been able to breath so well.
On a side note, I do not eat gluten or soy And choose organic and pasture raised meats as well. Life is great now!!!

Comment by Mike

I would think if one had a yeast infection that one would not want to take antibiotics as it destroys the good bacteria & can actually cause yeast to grow. I definitely agree, however, that yeast should be checked. I wish you well! :)

Comment by Sarah Jane

Wow! I am completely blown away with all your accounts. For almost 20 years I thought I was alone in this battle. I am finally having surgery next week. I am terrified. Not only because of fear of pain and complications, but more for the longevity of the recovery….I have three kids and me being out of commision is not really great for our household. My polyps are deep in my sinus cavitiies, no where near the openings of my nose. However, I suffer from daily head aches and facial pressure. Has any one experienced those along with their sinus problems?

Comment by Aimee

Good luck, Aimee!!! I had some pressure for sure. No smell. Constant plugged nose. Sick all the time. It stinks. I think you’ll get some relief soon!!! Lemme know how it goes!

Comment by brettcraig

About the nasal polyp surgery…I’m 61 years old, had 41 snare surgeries…one every month, and then I had a four hour micro-debrider surgery. I was awake for all 42 surgeries. The snare surgeries only hurt when they cut through their rotten little necks, but the micro-debrider 4 hour surgery DOESN’T HURT AT ALL! When they hit their ugly little necks, all you feel is a “tiny” electric shock, like you get in the winter running across the rug then touching a metal door knob. No recovery time for the surgery at all. My husband took me out to dinner right after. There was no bleeding or anything! SO IF YOU’RE FRIGHTENED, TRUST ME, IT’S A CAKE WALK! I was the first one my doctor ever did awake. I have no idea why they would want to knock anyone out – It doesn’t hurt. I currently need another surgery though…The rotten little suckers are back again.
Dee

Comment by Deana Curtis

Has anyone tried cayenne spray or coconut oil . Please share what has helped … I am dying here and thinking of going back on prednisone once again just so that I can get a bit of relief,

Comment by Kathy Trew

Didnt work for me at all. Cayenne, that is.

Comment by brettcraig

try to do nasal irrigation with garlic everyday. I felt this is amazing .

Comment by varinder kaur

Cayenne/Turmeric capsules in tandem with a “clean” diet works GREAT for me. I went from having polyps falling out of my nostrils to being polyp/sinus infection free for a year. :)

Comment by Sarah Jane

Great news! What was your daily intake? Also how much mg are in each capsule? Thanks

Comment by Jamie

I have just begun to look into alternative medicines, etc. for my polyps. I had surgery in 2012. It all went well, I didn’t take any pain meds, I could smell things I never knew I was missing. The downside, I seem to be sick every 2-3 months now. And like others, if I get a cold I have it for weeks and my nose plugs up and the polyps inflame. Only relief is Prednisone which we all know is not good for you. I’ve done the Neti Pot, the Naseonex and other nasal sprays, Budesonide through a nebulizer . . . you name it, I’ve tried it, medically speaking. Now I’ve been told another surgery could be looming. That won’t be happening. Although the surgery went well, the anesthesia did mess with my memory and although I have intermittent relief, I get sick more often now and I don’t feel fully recovered and it’s been two years! Time to be my own advocate and it helps to find I’m not the only one out there with this issue. Definitely going to try the gluten/dairy/sugar free diet and do some more research on the Vitamin C with bioflavonoids. Good luck to us all!!

Comment by Larie

How is that going? We all need to know. Thank you!

Comment by Nancy Feldman

I started taking 3000 mg of Vitamin C and 3000 mg of Bioflavanoids daily. That’s all my stomach could handle, even though previous comments said 5000 mg each daily. It’s been several weeks and I am clear as far as breathing goes with occasional congestion shifting from one side to the other. Taking a decongestant usually takes care of that. I still cannot smell a darn thing. So I would recommend the Vitamin C/Bioflavanoid combo which seems to have reduced some of the inflammation, but apparently not all since I still can’t smell. Doctor says the inflammation of the polyps blocks the smell sensors and that’s why I can’t smell. If my nose is clear for air passage I can only assume the polyps are still inflamed enough to block the smell sensors. Will find out tomorrow.

About every 3 months I get some sort of infection which causes one or both ears to get congested (like water in the ear) and it causes terrible ringing in my ears. Doctor puts me on antibiotics and within a couple days I’m feeling better, but after initial bout of ear congestion ringing lessens after antibiotics but never goes away completely.

Does anyone have any feedback on not being able to smell? Are most of us without a sense of smell? Any feedback is appreciated. Thanks!

Comment by Larie

Hi Everyone , This sinus problem is not small . I am waiting for my sinus surgery .it is on June 5 ,2014. there is long list before me . its hard to breath for me ,cant sleep ,cant work . But i found herbal treatment .Guys, i did nasal irrigation with garlic and salt and it was amazing . my nose is clear and i am not feeling any headache . i slept well last night . and today morning i am so relaxed. Guys try this , find the right way to do this and dont use Tap water . i hope it will help you to . thanks

Comment by varinder kaur

My surgery is on the 5th also. I wish you the best in recovery. How has the irrigation been gong for you since then? Have you had an allergy test done yet?

Comment by Myra

Never done the allergy test. Still doing the irrigation. Still feeling good.

Comment by brettcraig

I have simular sinus problems with an unexpected complication.

Comment by wendy

What is that??

Comment by Nancy Feldman

I had nasal polyps removed about two years ago. I was scared to get the surgery. But I didn’t have any problems at all. Recovery was fast and painless. Maybe my dr. Was really good…lol. Felt great to be able to breath for a year. But sadly they have returned. I think I’m going to try the no yeast/gluten free diet. Before I decide to go back in for surgery. I do notice the extreme swelling after a glass of wine or a drink. Weird.

The surgery I had was endoscopic nasal surgery….the had to remove a blockage as well. I was all messed up. Ha ha ha

Comment by Sonya

Yeah, my nose swell after beer or wine too – its a definite connection that’s real. There’s quite a bit of science on this correlation so what you’re feeling is right because I feel it too as do many others.

Comment by brettcraig

This happens to me as well, every time I drink . When you start your yeast/gluten free diet, I would be really interested to see what results you get. . Thanks
And did any one have an allergy test done before or after surgery

Comment by Myra

I just had my 7th sinus surgery since mid 90’s – 3 in the last 3 years! Polyp removal was only necessary the first time. The 4th time, the Dr. drilled 2 holes in the front of my head (the procedure has a name) and it seemed to help for a very long period of time/several years.

But now I’m in a vicious cycle of fungal issues. Since the last surgery mid April I have not been able to get rid of the fungus in my nose. I’m on amphoterisan to try and eliminate. Not to gross everyone out, but now I keep getting a blood drainage (over all these years, never had this). No choice but to stop treatment as this may be harming my sinuses. Go back to Dr. Tuesday to review.

I’m concerned but not letting it get to me too much because I’m so used to dealing with this.

I have copied some of the suggestions about eliminating certain foods products and will try. If anyone has a good resource for things to and not to eat, please share.

Comment by Jennifer

Wow I am also surprised by all the comments on something I never knew existed.
My surgery is on June 5th and I’m very nervous, and thinking of calling it off. My polyps are pushing out my eye and coming out my nose so they are highly suggesting it. But they hadn’t giving me any alternative methods. I’ve heard good and bad stories, but would anyone recommend surgery?

Comment by Myra

M, if they’re pushing out your nose and eye sounds like you desperately need the surgery.

Comment by brettcraig

If you have polyps, they need to be removed regardless. I had polyps removed my first surgery and never had to again. They also fixed my deviated septum at the same time (bone in nose that was crooked blocking air).

Comment by Jennifer

Do the surgery if it’s affecting your eyes. Get a second opinion if you haven’t. No surgery is without risk as you will read in this blog. Good luck and stay positive!

Comment by Larie

Thanks guys! I’m still nervous about the surgery but i plan to follow though. My doctor said that after surgery I will need therapy to control my allergies so they will not come back. Until then I will be Researching on my own.

Comment by Myra

I have had the surgery 3 times now.. it’s uncomfortable for a week that’s all, like still having them but clears up well… I will sinus rinse often after my next surgery as I have never kept it up and the polyps return.
Only very strong steroid tablets have managed to reduce the swelling for me, and you can’t stay on them for long.
Awaiting an appointment from ENT as I write.. The sooner the surgery the better for me !

Comment by John

Update to this post: Found out the stuff I was getting out was because of a mesh stint the Dr. installed at surgery (for the purpose of delivering steroids direct to the site vs. systemically). It’s dissolveable but some was still there that had to be manually removed. Still have fungus smell and doing my Amphotericin twice a day to try and eliminate. Let’s keep our fingers crossed. But at least I can breathe and know what was causing the stuff that had me really concerned.

Comment by Jennifer

My polyps can come back after June 2012 surgery. Now recommending I get mesh implant. Won’t do it as I’ve had issues with infections, ringing in my ears, loss of smell, and fluid in my ears. No surgery is without risk but I have more issues now than before my surgery in 2012. Good luck and stay positive and post anything new as I’d like to know how this mesh surgery works for you!

Comment by Larie

Same here I’ve having this issue for about a year. Doc says it allergies/sinusitis. I’ve been paying a close eye to reactions to a few variables, medicine does nit do much, spays, pills, decongestants work limited or not at all. As I was talking about variables, seem when im asleep, the swelling reduces and when I wake up it picks up, another strange thing when I drink liquor or reach a state of relaxation. Its goes away completely, a long with a diet and teas chamomile tea has been known to to reduce mucus discharge and relaxes me as well. Over the past year I have been under lots of stress and half the time I dont even know I am but im topped out. So my theory is using mucus reducing foods drinks tea, super foods…etc but managing stress relaves it almost at will. Idk what to say about it but it began when I had huge stress issues and when I stress its almost at will post nasal followed by swelling… etc. But stress is a trigger idk why? But relaxing helps a lot. If it helps anyone let me know plz.

Comment by miguel

Do you have polyps? If you do it’s very hard to stay consistently healthy I’ve found.

Comment by brettcraig

My son is 10 and his story at least parts of it seem so similar to yours except that we have mold in new homes that we have built so the mold thing was not an issue however his allergy tests suggest he is allergic to mold. He had been a sick plugged up boy since he was 6 months old and have been back and forth to ent specialists for years. Had his tonsils and adenoids removed. Been on a series of different antibiotics etc. last night he did a nose rinse because the kid could hardly breathe after getting a cold. I am wondering if he pushed out two polyps because he has done rinses for years and he feels the same as you they don’t work and don’t push through. However last night I just put a little water through and told him to blow in the sink and 2 seperate blows he blew put this round soft tissue balls with streaks of blood around them. Never has this happened before. I took pictures for the doctor. I was wondering what you thought.

Comment by Ann

Week, first, does he have polyps? Do you know? That would be the first question. Be good to find out.

You know, it seems unlikely that you could blow them out as it takes intentional surgery to detach these monsters but what I’d say that what you saw was is the thick clotted snot that can form back there in his sinuses cuz he is not draining well.

Healthy sinuses drain and swollen and closed sinuses stop proper daring which leads to infection. That snotty stuff just festers in that 98.7 degree humid environment in your son’s sinuses.

Polyps can fill the sinuses and often you can’t see them. So find out.

Hope you can get to the bottom of it.

Comment by brettcraig

Thank you :)

Comment by Ann

These home antidotes will be considered before a diagnosis can be alleviated with ease.
These are the medicinal use of it the healthy
foods, Milk products, this happens the circumference of the infected yeast infection picture area dry and clean water.
Systemic yeast infection symptoms subside. There are various methods of eating yogurt
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nor will it help to detoxify your body and causing the good bacteria as well.

Comment by homepage

Fellow suffers, just wanted to add an update. Have been taking the Vitamin C with Bioflavanoids for a couple months now (5000 mg each). Checked with my primary care doctor and pharmacist before I started. Both said okay to pursue. Last appointment with ENT he said the polyps have shrunk! He says it’s the Budesonide I’ve been taking with a nebulizer since Aug 2013. Not likely. Three months ago he was recommending second surgery. I attribute it to the Vitamin C/Bioflavanoids. He didn’t pay much attention when I told him this was my new routine. Still do the Budesonide but may stop it just to see what happens.

Last week I caught a small cold. Congestion. Yuck. Sense of smell went away … again. Rather than rush to call ENT and ask for Prednisone and antibiotics, I stayed with my Vitamin C/Bioflavanoid routine. After a few days congestion started to go away and after 7 days my smell started coming back, slowly but surely. A little more every day!

I’ve also tried to watch my dairy consumption. I haven’t given it up but I try to be more mindful of it. I’ve also started having smoothies once a day that contain anti-inflammatory foods like spinach, kale, berries, etc. I think that is helping as well. Hopefully my new routine will continue to be successful.

Different things work for different people, but the Vitamin C/Bioflavanoids and smoothies are working for me!

Comment by Larie

Great comment, Larie

Comment by brettcraig

Thanks for sharing your personal stories with everyone. My adventure started around 9 years ago with a deviated septum followed by chronic sinusitis that required a surgery followed by 5 years of glorius and blissful polyp-free life and then it came, growth on both sides, popping out of my nostril, that shrinks and grows and I had a surgery again, which gave me a relief for 6 months. Its back again and am not able to smell, breathe right, talk right or sound right. The biggest fear I have is that if somebody ties a gag around my mouth, I will be dead.

Comment by josephmatthew2014

So miserable. I am so sorry. How old are you? Curious. Mine have not returned 3 years later but wow, 5 years you were clear. Unreal. Then they come back. Terrible.

Comment by brettcraig

Sadly I had been operated twice for this recurrent polyps, but I could not get rid of them. Just after ten months of my first operation it came back, then I scheduled 2nd Operation with a different surgeon. But alas! Polyps came back again just after a year. I lost my sense of smell. Being an employee of a hospital I had an opportunity to consult with different ENT Surgeons ( not less than 10) but every surgeons are having the same opinion that operation can not guarantee that Poly pus will not come back . What to do? Helpless!
I am afraid to go for an operation for third time.
I am sure recurrent operations are responsible for the loss of my sense of smell. Now I am not only having polyps problem but have become an anosmic patient as well.
My polyps when flares up it completely blocks air way, I spend sleepless night, only the sufferer knows how difficult it is to breath by mouth. Mouth & throat dries up, what a terrible situation.
Sometimes prednisone helps but once you stop, polyps flares up as usual. It seems this problem does not have any permanent solution. Sometimes I wonder is our medical science is so behind that it fails to make a permanent. Solution for such disease?

Comment by Chowdhury

I’m sorry and totally relate to your frustration. It does seem the science is behind and the answers are inadequate. I think there’s not enough people suffering from it to make the disease as front page as it should be. You might try some saline rinses w/ steroid and antibiotics mixed in. That what i do. Ask your doctor.

Comment by brettcraig




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